Annie Kennedy

Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases

Travels From Travels From:
Washington, DC, USA
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Annie Kennedy Biography

Annie Kennedy, currently serving as the Senior Vice President of Legislation and Public Policy at Parent Project Muscular Dystrophy, is dedicated to improving health outcomes for those living with Duchenne muscular dystrophy. Her role involves building robust partnerships with key stakeholders such as policymakers, federal agencies, industry leaders, and alliances to advance the priorities of the Duchenne community. Her current endeavors focus on the engagement around PDUFA VI/VII, the 21st Century Cures Act, the MD-CARE Act implementation, and liaising with the FDA and industry around regulatory policy and therapeutic pipelines.

In addition to her role at Parent Project Muscular Dystrophy, Kennedy sits on the Board of Directors of Cure SMA and serves on the Steering Committees of the 'Transition to Care' coalition and the Patient-Driven Values in Healthcare Valuation (PAVE). These positions further illustrate her deep involvement in initiatives aimed at improving health outcomes and policy for those living with rare diseases.

Moreover, Kennedy's active participation extends to the National Health Council's Valuation Work Group, the Caregivers Pathway Task Force, and the National Burden of Rare Disease Study Advisory Group. Her recent contribution as a Design Team member of the NCATS/ORDR Tool Kit Project and her service on the FasterCures Patients Count Leadership Council further underscores her commitment to driving positive change in health policy and care for those living with rare diseases. Her work and commitment showcase her understanding of the complex healthcare landscape and her ability to effectively communicate and advocate for important healthcare issues.

Annie Kennedy Videos

  • Annie Kennedy
    Economic Cost Personal Impact and Policy Solutions. Annie Kennedy. 83 views · 5 months ago ...more. EveryLife Foundation for Rare Diseases.
  • Annie Kennedy, Parent Project Muscular Dystrophy
    In September 2019, the National Health Council held a training conference for the patient organization community to share the importance of...
  • Policy Challenges for Covering Innovative Treatments
    The Rare Disease Lifecycle: Diagnosis to Treatment | February 28, 2018

FAQs on booking Annie Kennedy

  • How do I book Annie Kennedy to speak at my event?

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  • What are the speaker fees for Annie Kennedy

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  • What topics does Annie Kennedy speak about?

    Annie Kennedy is a keynote speaker and industry expert whose speaking topics include Female Leadership, Genetics, Government, Health, Healthcare, Leadership, Medicine, Women.
  • Where does Annie Kennedy travel from?

    Annie Kennedy generally travels from Washington, DC, USA, but can be booked for private corporate events, personal appearances, keynote speeches, or other performances. For more details, please contact an AAE Booking agent.
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    AAE Speakers Bureau has successfully booked keynote speakers like Annie Kennedy for clients worldwide since 2002. As a full-service speaker booking agency, we have access to virtually any speaker or celebrity in the world. Our agents are happy and able to submit an offer to the speaker or celebrity of your choice, letting you benefit from our reputation and long-standing relationships in the industry. Please click the Check Availability button above and complete the form on this page including the details of your event, or call our office at 1.800.698.2536, and one of our agents will assist you to book Annie Kennedy for your next private or corporate function.
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Annie Kennedy is a keynote speaker and industry expert who speaks on a wide range of topics . The estimated speaking fee range to book Annie Kennedy for your event is available upon request. Annie Kennedy generally travels from Washington, DC, USA and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Dr. Vidya Raman-Tangella, Jill Hagenkord, MD, Elizabeth Nabel, Dr. Elaina George and Christa-Marie Singleton. Contact All American Speakers for ratings, reviews, videos and information on scheduling Annie Kennedy for an upcoming live or virtual event.

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