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Alex Haagaard

Disability Activist & Designer

Alex Haagaard
Travels From Travels From:
Toronto, Canada
Speaking Fee Speaking Fee:
Live Event: $10,000 - $20,000
Virtual Event: $5,000 - $10,000
More Fee Info
Categories Categories:
Categories Categories:
Civil Rights, DEI, Design, Disability, Diversity & Inclusion, Empowerment, Government, Healthcare, LGBTQ, Medicine, Personal Growth, Social Activism, Social Justice
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Alex Haagaard Biography

Alex Haagaard has consulted on disability-led design methodologies with companies including the New York Times, Washington Post, Volkswagen and Twitter. They earned their Master of Design from OCAD University in Toronto, studying knowledge gathering practices of emergency medical professionals for the purposes of healthcare information design. In 2016, they transitioned to working full-time as a patient pursuing diagnosis and care, an experience which they describe as the “world's worst paying, least prestigious design research fellowship.” In 2018, Alex joined The Disabled List in the role of Research Dork. They recently co-taught a course in Disability-Led Design within the Products of Design program at the School of Visual Arts in New York, and were a Fall 2020 Designer-In-Residence within the Design for Social Innovation program at SVA. Alex’s research interests include the phenomenology of clinically unaccredited disability, knowledge practices within chronic illness communities, and liberatory design methods.

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Speaker profile last updated by AAE Talent Team on 08/01/2024.

Alex Haagaard Speaking Topics

  • Accessibility

    How can we design accessible systems, services, spaces and products? Who gets left out by typical approaches to accessibility and why? This session discusses the history of "barrier-free" and accessible design, examines why chronic illness and neurodivergence have never been meaningfully included within those movements or the legislation and compliance frameworks that emerged from them, and suggests actionable approaches to create design outcomes that are as usable as possible for as many people as possible.

  • Inclusive Design

    What does it mean for design to be meaningfully inclusive? Who and what tends to get left behind by processes that we claim are inclusive, and how do we make those processes better? This session examines how we can build equity and accessibility into our design research methods, from research screeners and co-design workshops, through to analysis and reporting.

  • Patient-Centered Medicine

    Chronically ill people often struggle to access the answers and care that they need • the average time to diagnosis for an autoimmune disease is 4.5 years. Through their struggles, they also develop exceptional systems thinking skills, and insights into the gaps that are designed into healthcare systems and services. This session challenges audiences to ask: what can medicine learn from chronically ill people? How can we make healthcare systems work better for everyone by putting "difficult" patients at the helm?

  • Biohacking Chronic Illness

    I've been chronically ill since I was four years old but my chronic illnesses weren't diagnosed until I was thirty. Even once I had answers about what was going on in my body, I couldn't get any treatment from my doctors. I was not actively dying, but I had no quality of life. I was sleeping upwards of 14 hours a day, had no circadian rhythm and was in constant severe pain. I realized if someone was going to save my life it would have to be me, so I applied my background in pathobiology to solve the molecular mechanisms underlying my most debilitating symptoms, then identified potential therapeutic agents I could access in the form of over-the-counter drugs and plant medicines. I artificially restored my circadian rhythm, brought my Epworth Sleepiness Scale from a 21 to a 2, regained my driver's license, grew two inches as the muscles in my back relaxed and, for the first time in my life, gained the ability to not only walk without pain, but to run and lift weights.

    This session touches on how and why healthcare fails chronically ill patients, and tells an inspiring, empowering, challenging story of one patient who managed to beat the system.

Alex Haagaard Videos

  • MWDW 2021 | Thank You for Your Feedback | Alex Haagaard | Liz ...
    MWDW 2021 | Thank You for Your Feedback | Alex Haagaard | Liz ...
    In Hyphen-Status, whatever follows the hyphen is systematically uncompensated and rendered powerless. When Co-Designers, Co-Creators, ...
  • Keynote Session: Alex Haagaard and Liz Jackson - YouTube
    Keynote Session: Alex Haagaard and Liz Jackson - YouTube
    The stories we tell about design inform the assumptions we make in practice. One such story centers our infrastructure and the information ...
  • Fn 14: Design Bias is Ruining Accessibility
    Fn 14: Design Bias is Ruining Accessibility
See All Videos »

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  • What topics does Alex Haagaard speak about?

    Alex Haagaard is a keynote speaker and industry expert whose speaking topics include Civil Rights, DEI, Design, Disability, Diversity & Inclusion, Empowerment, Government, Healthcare, LGBTQ, Medicine, Personal Growth, Social Activism, Social Justice.

  • Where does Alex Haagaard travel from?

    Alex Haagaard generally travels from Toronto, Canada, but can be booked for private corporate events, personal appearances, keynote speeches, or other performances. For more details, please contact an AAE Booking agent.

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Alex Haagaard is a keynote speaker and industry expert who speaks on a wide range of topics such as Accessibility, Inclusive Design, Patient-Centered Medicine and Biohacking Chronic Illness. The estimated speaking fee range to book Alex Haagaard for your event is $10,000 - $20,000. Alex Haagaard generally travels from TorontoCanada and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Lydia X. Z. Brown, Tiffany Yu, Dominick Evans, Chella Man and Shani Dhanda. Contact All American Speakers for ratings, reviews, videos and information on scheduling Alex Haagaard for an upcoming live or virtual event.

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